tag:blogger.com,1999:blog-5751271189667675662.post4260209340827442946..comments2024-03-28T09:19:51.567-04:00Comments on Look Me In The Eye: Some new autism research is funded . . .John Robisonhttp://www.blogger.com/profile/07407165016025447113noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-5751271189667675662.post-22016283381280483762010-04-23T13:54:09.714-04:002010-04-23T13:54:09.714-04:00Thanks a lot for this post - it's great. I st...Thanks a lot for this post - it's great. I started suspecting autism in my son at 7 months, spent hours doing research about it, etc. He's 3 years and we just now finally got the actual diagnosis. We kept being told that he didn't have it, and even one said that I "wanted him" to have it. We really need to change the attitude and knowledge of the medical community. Like the other posters I lost a couple of years. He was in EI, which was fantastic, but it focused more on specific skills like speech and not developmental skills.Robinhttps://www.blogger.com/profile/16360008952142171833noreply@blogger.comtag:blogger.com,1999:blog-5751271189667675662.post-67436155054045129702010-04-15T17:31:38.767-04:002010-04-15T17:31:38.767-04:00Dear John;
Thank you so much for the work you do ...Dear John;<br /><br />Thank you so much for the work you do to make people on the AS more understandable, more acceptable by their peers, families and themselves. I have two boys on the spectrum; one "lightly dusted" and the other much further into the spectrum. We have taught them from day one that this is who they are, and we rejoice in them as all parents do. I like the term "neurotypical" because it labels US and not them. We all look forward to more of your work. Thank you.<br /><br />Aimee Conner<br />Portland, OregonAimée C.https://www.blogger.com/profile/01337265764920470461noreply@blogger.comtag:blogger.com,1999:blog-5751271189667675662.post-61512927860952976572010-04-13T11:42:38.553-04:002010-04-13T11:42:38.553-04:00It took almost two years for us to receive a diagn...It took almost two years for us to receive a diagnosis of autism. Then we had to fight for ABA, I regret the time we wasted trying to figure out what was wrong and find help. <br /><br />The goal for us is improving the quality of life for my son. So, what we try to do everyday is work on developing his abilities. We are trying to prepare him for an independent fulfilling life, not change his personality or curb his passions. <br /><br />With that said, I love who my son is becoming, he’s interesting and funny. I don’t want to change his personality or “normalize” him. I want him to feel proud of who he is and I want the world to understand that he is capable of a lot. He needs understanding and some accommodations, what he doesn’t need is pity, or to feel like he is damaged goods.Bonniehttps://www.blogger.com/profile/06460284744916937923noreply@blogger.comtag:blogger.com,1999:blog-5751271189667675662.post-82894068090578032832010-04-10T09:54:49.413-04:002010-04-10T09:54:49.413-04:00Very interesting stuff. I agree completely - early...Very interesting stuff. I agree completely - early detection and therapy will only serve as benefits for the children today that a lot of us didn't get in the past.<br /><br />Another significant problem, as voiced by Angela above, is having qualified and trained doctors who can recognize and more quickly refer infants for further evaluation. If ASD is becoming as prevalent as the medical community believes (1 in 100 children at last calculation), then why haven't the pediatricians and child psychologists in that field been more proactive at early testing? It seems like this responsibility has been left up to researchers far removed from the family-oriented setting of a pediatrician's office. If they see certain signs at the infant level, then they need to step up and tell the parents! <br /><br />No more status quo and rushing one child out the office to let in the next one. No more ignoring the parents' concerns; yes, they may have invested years and hundreds of thousands of dollars into their education, but parents see their children for the vast majority of every day - not just an hour or two a month. If the parents have a legitimate concern, no matter how small, then the doctor need to <b>listen</b>.Anonymoushttps://www.blogger.com/profile/11712902583277436056noreply@blogger.comtag:blogger.com,1999:blog-5751271189667675662.post-43084114846363475042010-04-09T16:12:00.966-04:002010-04-09T16:12:00.966-04:00Love your book!
Did you hear about the coming chan...Love your book!<br />Did you hear about the coming changes to the DSM-5 regarding aspergers - if I understand, they are removing aspergers?<br /><a href="http://autism.infogateway.info/DSM5AspergersAutismDiagnosis" rel="nofollow"> MORE HERE</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5751271189667675662.post-33389793560802601192010-04-09T15:12:49.193-04:002010-04-09T15:12:49.193-04:00I have your book in front of me... it really open...I have your book in front of me... it really opened my eyes to my son. A great book!<br /><br />I would like some type of a blood draw to say that my son is autistic. There are so many variables.<br /><br />Early detection is good... I knew my son wasn't right early on... but the doc's kept saying oh I don't see that... or when has he started having nightmares (like I hadn't said it for the last 3 times we came in). <br /><br />The doc's I think are the problem... by the time he was to be diagnosed, when they finally said yeah you need help I was very pg with my daughter... And I also gave up on that doc and went to his partner who is way better. <br /><br />I didn't get him true help until he was 5 when he was diagnosed. I'm still upset about that... he's 7.5 and a handful. <br /><br />Also, I think there should be some federal or state help... automatic help. We make just enough to not get help and we can't pay for him to get help.<br /><br />Luckily his first 5 years of life I worked like heck with him. So he can be a very sweet boy... but when we had my daughter I can't do so much with him anymore and I get very frustrated like my mom. <br /><br />Anyone with a child with disability should be aloud extra help with or without the income. <br /><br />Sorry... went over board here. <br /><br />Angela (I signed in with my son's account)Unknownhttps://www.blogger.com/profile/09179510740875786768noreply@blogger.com