tag:blogger.com,1999:blog-5751271189667675662.post8511123498214590871..comments2024-03-28T09:19:51.567-04:00Comments on Look Me In The Eye: One voice among thirty - why one person's vote mattersJohn Robisonhttp://www.blogger.com/profile/07407165016025447113noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-5751271189667675662.post-36564202835817671632010-03-18T17:52:10.265-04:002010-03-18T17:52:10.265-04:00Thank you for looking at the Autism Speaks website...Thank you for looking at the Autism Speaks website to obtain a better understanding of the different ways in which the organization receives input and advice from both academic and stakeholder partners. The website you are referring to which lists the boards and committees is here: http://www.autismspeaks.org/science/overview/advisory_boards/index.php<br /><br />Essentially there are two "types" of oversight bodies. An advisory board and an advisory committee. The advisory boards, together with outside experts in targeted fields, provide structured input on the merits of applications for Autism Speaks resources. This includes funding support, and in the case of the Tissue Advisory Board, advice on the best way to distribute previous post-mortem brain tissue for research.<br /><br />Complementary to these advisory boards are advisory committees which provide input and expertise specific to one of the special initiatives or clinical programs which Autism Speaks supports. Most often this has to do with potential new activities, priorities, leadership and organization within that initiative or program. rather than guidance about Autism Speaks investment of resources. These include AGRE, or Autism Genetic Resource Exchange, ATN, or Autism Treatment Network, ATP or Autism Tissue Program and ACTN or Autism Clinical Trials Network. Autism Speaks also recruits scientific and community input on an ad-hoc basis to advise on other issues on more of a short-term basis when needed.<br /><br />The purposes of these differing advisory boards and committees is to not only provide a wide range of expertise and insight to advise the organization, but to also provide more targeted input in specific scientific areas that could benefit from particular insights. These needs may differ from program to program. Autism Speaks tries to include, when possible, a parent representative or stakeholder in each of these committees and advisory boards.<br /><br />We hope this is helpful to you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5751271189667675662.post-85660319930236692262010-03-18T14:28:08.972-04:002010-03-18T14:28:08.972-04:00I hope that they have made a mistake in their sele...I hope that they have made a mistake in their selection of you (or genuinely want your input).<br /><br />Also, you mentioned a few areas you are interested in... Naturally, TMS research that you've been activily involved in, as well as community funding. Could you comment on what other research areas you may push for greater funding, as well as areas that AutismSpeaks may currently fund that you feel are of lesser importance?<br /><br />According to their site, you are on two boards - the Science Advisory Board and the Treatment Advisory board. There are also a Tissue Advisory Board, Innovative Treatment Advisory Board, AGRE Steering Committee, ATN Steering Committee, ATP Steering Committee, ATP Exectutive Committee, and ACTN Steering Committee. The AutismSpeaks website does not provide much explaination of the functions and differences of each of these boards. Could you comment?Unknownhttps://www.blogger.com/profile/08020050147834810791noreply@blogger.comtag:blogger.com,1999:blog-5751271189667675662.post-59672848840005245632010-03-18T03:03:42.870-04:002010-03-18T03:03:42.870-04:00I'd be surprised if anyone doubts you personal...I'd be surprised if anyone doubts you personally. It's the organization that has a lot of repair work to do in order to make me a believer.<br /><br />SilkBlogStalkerhttps://www.blogger.com/profile/13639279894298362648noreply@blogger.comtag:blogger.com,1999:blog-5751271189667675662.post-12593504319224084292010-03-18T01:47:58.026-04:002010-03-18T01:47:58.026-04:00'But if you are passionate and articulate you ...'But if you are passionate and articulate you can accomplish a lot.'<br /><br />You've already proven that to be true, John - long before putting it into practice in the board room. I don't ever doubt your ability to make yourself heard. <br /><br />Thank you for standing strong and making a difference.jesshttps://www.blogger.com/profile/12741476791827870513noreply@blogger.com