APAC 2013 - the Asia Pacific Autism conference in Adelaide, Australia
APAC 2013 is done. It was a very impressive conference; one
I am very proud to have taken part in. The organizers filled the Adelaide
Convention Center with 1,300 delegates (conference attendees) from at least 20
countries. There were over 100
presentations, including poster sessions for new and ongoing research.
We heard science and therapy keynote presentations from Brenda
Smith Myles Ph.D., a consultant with the Ohio Center for Autism and Low
Incidence; and Eric Courchesne, director and principle investigator of the UCSD
Autism Center of Excellence. We also
heard from Karen Pierce Ph.D., an Associate Professor in the Department of
Neurosciences at the University of California; Professor Tony Charman, who holds
the Chair in Clinical Child Psycholgy at the Institute of Psychiatry, King’s
College London and Pat Howlin - Emeritus Professor of Clinical Child Psychology
at the Institute of Psychiatry, London and Professor of Developmental Disorders
at the University of Sydney.
Other invited speakers included Michelle Garnett and Tony
Attwood who talked about their new book on autism and affection; Geraldine
Robertson, the inimitable Wendy Lawson, Dennis Debbault, India’s Merry Burua,
Anita Russel, ASAN AU’s Katherine Annear and many more. You can see the whole list here
The delegates were a mix of clinicians, teachers, autism
researchers, parents, and others involved in working with people on the
spectrum. Many attendees were from
autism groups in other countries like Thailand and India. Autism support societies from all over
Australia were represented as were government autism centers and folks from
many universities and hospital research centers.
While there was a lot of talk about what we are doing to
understand autism and help people with it to be as successful as we can, there
was also a refreshing acceptance of difference that’s often lacking at
conferences in the USA.
The neuro-diversity concepts people fight so hard about in
America seem to be accepted more naturally in Australia. The whole conference embraced the concept of
helping autistic people be the best we can be without trying to marginalize us
or make us into something we are not. The anti-vaccine movement never took hold
here in the big way we saw in the US.
There was some talk about basic science, but the majority of
the technical presentations were aimed at therapy, teaching techniques, and
services to help our community now. I
already mentioned Tony Attwood’s session on love and affection. Liz Laugeson’s PEERS was another example of a
beneficial new therapy tool.
Stephen Shore and I did Friday’s keynote session together,
and we both agreed APAC was one of the best-run autism conferences we’ve
seen. There was a good mix of science –
with presenters from some of the top University research centers – and
self-advocacy, family service, and just plain networking.
After that keynote talk, I joined Wendy Lawson, Katherine
Annear, and Ari Neeman for a panel, after which my wife Maripat and I held a
free-ranging Q&A session with Future Leaders – a fine group of young adults
on the spectrum.
Earlier, Maripat and I did a workshop on adult relationship
issues, and talked with many people individually after that public
session. That session and the meetings
after covered both romantic relationships and questions of parenting and family
management. At our age, and with four
grown kids between us, and no casualties, we have plenty of experience with
that! Our program was very well received
and we look forward to bringing it to other conferences and events.
One of the biggest hits of my talk was the discussion about
education and people with autism. I
talked about how our current educational system (in both America and Australia)
is really a win-or-lose system, where you follow the path through high school,
college, and grad school, or you drop out partway with nothing.
You don’t earn a useful credential, with which to get a job
until the whole thing has been completed, which never happens for many
people. In most places the high school graduation
rate is under 75%, and for kids with differences it’s often 50% or less. When you combine those numbers with the stats
for college graduation in a field where there is a decent chance of employment
– the odds are stacked very heavily against a kid who’s different.
I talked about a different educational model – one that
begins by “teaching by doing,” and gives students progressively more valuable
credentials as they progress through the system, but allows them to leave at
any time with job skills and a plan for an independent future. That, to me, is more consistent with the
reality of how students with differences progress through school.
People were excited to hear that we are opening a school in
my automotive complex back home as the first step in implementing this
vision. As I told the audience, I hope
to return to APAC 2015 and report on progress with our first group of students!
The conference wrapped up with a huge formal ball, which
rather surprised me at first. The ball
was a very elaborate affair, attended by over 500 people in formal dress. There were flashing lights, loud music, and
all sorts of sensory affronts to the autistic person. But for a person who liked those sorts of
things, it was spectacular!
The theme was a celebration of 50 years of service from
Autism South Australia, the conference host.
At first I asked myself why they didn’t have a more
autism-friendly event, but them I realized the event was not for autistic
people (as attendees.) Rather, it was to
raise money to benefit autistic people – a rather different proposition. I saw some of my friends from the conference
that night, but most of the crowd was actually affluent business people from
the community who just enjoyed a night out in fancy dress to support a good
cause. And it worked – they took in over
$70,000 from the dinner! They had to pay for food out of that sum, but it was still a VERY impressive fundraising effort.
The whole conference appeared to me a tremendous success,
with surplus funds going to Autism SA, who will spend them on community
services for people with autism.
Now we’ve got a day to unwind in Melbourne, and then a
30-hour trip back home, to my world of cars, kids, and everything else back
home. Thanks to all our friends and everyone
who worked to make this event – and this trip – possible
John Elder Robison
Comments
The dinner was a great night of fundraising and awareness, and because of the generosity of the autism SA community, it helped us raise $30,000 to support the work of Autism SA. We thank all our conference delegates and supporters who attended the event.
We look forward to meeting with you again at APAC15, and hearing about the progress of your school.
Regards,
Autism SA
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